this post was submitted on 04 Apr 2025
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I received news this morning that some NIH repositories now have a message: “This repository is under review for potential modification in compliance with Administration directives.” Many of these repositories have controlled access data (because of they involve human medical data – I probably don’t have to say it, but please don’t share restricted human medical data openly…), but some have open access/unrestricted data.

Some of the affected repos:

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[–] [email protected] 15 points 12 hours ago (1 children)

If they’re “unarchivable”, how are they online in the first place? At some point, the data sets were broken down so they could be read and searched via computer. Why can’t that information be backed up?

I must be misunderstanding the headline.

[–] [email protected] 13 points 11 hours ago (1 children)

The article mentions how its human medical data that shouldn't be public, its not a technical issue but a privacy one

[–] [email protected] 1 points 2 hours ago

Okay. Thank you.

[–] [email protected] 9 points 17 hours ago