this post was submitted on 04 Apr 2025
208 points (97.3% liked)

Technology

68349 readers
3466 users here now

This is a most excellent place for technology news and articles.

Our Rules

  1. Follow the lemmy.world rules.
  2. Only tech related news or articles.
  3. Be excellent to each other!
  4. Mod approved content bots can post up to 10 articles per day.
  5. Threads asking for personal tech support may be deleted.
  6. Politics threads may be removed.
  7. No memes allowed as posts, OK to post as comments.
  8. Only approved bots from the list below, this includes using AI responses and summaries. To ask if your bot can be added please contact a mod.
  9. Check for duplicates before posting, duplicates may be removed
  10. Accounts 7 days and younger will have their posts automatically removed.

Approved Bots

founded 2 years ago
MODERATORS
[email protected]
[email protected]
[email protected]
[email protected]
[email protected]
[email protected]
208
Massive Unarchivable Datasets of Research That is Supported by The National Institutes of Health, Could be Lost Forever. (forum.safeguar.de)
submitted 1 day ago* (last edited 1 day ago) by [email protected] to c/[email protected]
6 comments fedilink hide all child comments
 

I received news this morning that some NIH repositories now have a message: “This repository is under review for potential modification in compliance with Administration directives.” Many of these repositories have controlled access data (because of they involve human medical data – I probably don’t have to say it, but please don’t share restricted human medical data openly…), but some have open access/unrestricted data.

Some of the affected repos:

you are viewing a single comment's thread
view the rest of the comments
[–] [email protected] 22 points 1 day ago (1 children)

If they’re “unarchivable”, how are they online in the first place? At some point, the data sets were broken down so they could be read and searched via computer. Why can’t that information be backed up?

I must be misunderstanding the headline.

[–] [email protected] 30 points 1 day ago (1 children)

The article mentions how its human medical data that shouldn't be public, its not a technical issue but a privacy one

[–] [email protected] 4 points 18 hours ago

Okay. Thank you.