this post was submitted on 13 Sep 2023
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A disturbing number of TikTok videos about autism include claims that are “patently false,” study finds::A recent study published in the Journal of Autism and Developmental Disorders found that a significant majority (73%) of informational videos on TikTok tagged with "#Autism" contain inaccurate or overgeneralized information about autism. Despite the prevalence of misinformation, these videos have amassed billions of views, highlighting the potential for widespread misconceptions about autism on the platform. ...

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[–] [email protected] 153 points 1 year ago (4 children)

It disturbs me that people would consider TikTok an accurate source of....anything.

[–] [email protected] 51 points 1 year ago (7 children)

The bar is so low. I remember my old roommates from Uni. If there was any disagreement about a thing, they’d whip out their phone, find any article that remotely supports their claim and that was it. You’re wrong. A case in point was using reg dishwashing soap in a dishwasher (I told them all not to). They couldn’t really find anything on Google so they just said it was fine.

The future looks as bright as mud.

Fact checking. Never heard of it.

[–] [email protected] 38 points 1 year ago (4 children)

I had someone yesterday claim I was wrong about a pretty complicated scientific thing but they were vague and didn't say why I was wrong.

I have a background in that topic, so it only took a second to find a scientific study to back me up...

They immediately replied with an article that had nothing to do with what anyone was talking about, and when I told them that, they refused to explain what was relevant, called me rude, and blocked me.

Their mind was made up, and they just picked the first result off whatever they googled and assumed it backed them up.

Idiots "doing their own research" rarely works out well, they're not trying to learn anything, just win an argument they don't understand

[–] [email protected] 17 points 1 year ago (2 children)

By the way, I've seen Google displaying halucinated AI written articles as the main, highlited result.

[–] [email protected] 7 points 1 year ago

Yep, ask Google something like "water causes covid" and you'll likely get some idiot saying water causing COVID because that matches your search.

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[–] [email protected] 9 points 1 year ago* (last edited 1 year ago)

This is perpetuated by some shitty internet personalities too.

"You will NEVER believe it, this study peer reviewed paper TOTALY DEBUNKS !!!"

(links to a paper that indicates the exact opposite of that)

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[–] [email protected] 19 points 1 year ago (2 children)

As someone who remembers the days before the internet, that's 1000x better than our method of just believing whoever seemed the most sure. We weren't running down to the library 10 times a day to find quality sources for information, we just didn't know things. When did that person die? Who knows. Is it safe to mix these chemicals? Try it and see.

Old wives tales and superstition were responsible for at least 60% of all decision making.

[–] [email protected] 8 points 1 year ago (1 children)

I don’t know about this. Not knowing is better than knowing wrong things imo. The internet has made too many idiots, not smarter, but just more sure of their idiocy.

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[–] [email protected] 14 points 1 year ago (4 children)

using reg dishwashing soap in a dishwasher

At least that's a mistake they'll (probably) only make once.

[–] [email protected] 12 points 1 year ago

I admire your optimism.

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[–] [email protected] 13 points 1 year ago (3 children)

Reminds me of the time that I desperately needed to make a latte but discovered I was out of milk. Rather than doing the smart thing and giving up I searched online to find out if sour cream can somehow be used as a substitute.

Turns out you can’t trust a single article in a sea of emptiness

[–] [email protected] 11 points 1 year ago

It's the way search engines work.

Phrase a question wrong, and you'll get shitty results that agree.

Like Google "what causes an upset stomach" would probably give good results. Google "water causes upset stomach" because you think water causes it, and you'll get results about water causing an upset stomach. Even if that's not the cause in your situation

[–] [email protected] 7 points 1 year ago (1 children)

I once subbed ghee for butter when making icing for a cake. My logic was that ghee is just clarified butter. That may be true, but it tasted awful. I'm worried now that this comment will somehow find its way into an AI nugget recommending ghee as a butter substitute. It isn't! Don't do it! (Delicious for curries though.)

[–] [email protected] 5 points 1 year ago (1 children)

You can swap between the two for most baking if the it’s going to be paired with a lot of flavour. Pizza dough, naan, etc. But as a base for something, yeah, I wouldn’t 😆

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[–] [email protected] 11 points 1 year ago* (last edited 1 year ago)

A case in point was using reg dishwashing soap in a dishwasher (I told them all not to). They couldn’t really find anything on Google so they just said it was fine.

The good thing about that particular misapprehension is that it is very quickly self correcting.

[–] [email protected] 7 points 1 year ago (1 children)

LOL - sink dish soap in the dishwasher!

I have made that error once... Lucy, you got some 'splainin' to do!

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[–] [email protected] 14 points 1 year ago

It's an increasingly popular first search goto for basic research for a lot of people. YouTube was like that for a long time in the same way Amazon is for product searches.

Not a great trend.

[–] [email protected] 7 points 1 year ago (1 children)
[–] [email protected] 8 points 1 year ago

I feel Sturgeon's pain. Was just in an old book shop that had every genre imaginable including even cookbooks and weird old junk books about the paranormal and casting spells, trashy romance stuff, old historical records, all sorts of random crap. I asked if there were any science fiction or fantasy books. Owner of store: no we don't stock that stuff, we only stock things of literary value.

Alright buddy, geeze. Yeah no sicence fiction or fantasy of any literary value was ever written I guess.

[–] [email protected] 69 points 1 year ago (6 children)

Great to know! Now do ADHD.

I'm getting kinda tired of being flooded with ADHD memes that are just like, "I sometimes get distracted" or, "I don't like doing chores".

[–] [email protected] 26 points 1 year ago (1 children)

And the amount of "omg I stimmed in this public place!" That are then videos of them just being dicks and pretending that this "uncontrollable movement" knocked something over.

And the amount of patently fake DID tiktoks, ugh. I moved over to YouTube shorts mostly for other reasons but there are way less of those things going on there.

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[–] [email protected] 9 points 1 year ago

I understand that it can be annoying, but I personally find the adhd memes pretty funny and relatable because my fiancee has adhd. A lot of the memes about not doing chores and getting distracted can be applicable to neurotypical people, but there's also an additional layer of lived experience that accompanies those memes to be very relevant to people that have adhd or lives with someone who does

[–] [email protected] 5 points 1 year ago (3 children)

I'm really torn on this, because on one hand the over generalization of ADHD prevented me - and is still preventing me - from taking my own diagnosis too seriously, but that same information got me to at least think about it and get a consult with a psychiatrist on it in the first place.

It helped the diagnosis but not the feelings of being an imposter post-diagnosis.

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[–] [email protected] 36 points 1 year ago

Today I learned some people actually think tiktok is the place for accurate medical information

[–] [email protected] 34 points 1 year ago (1 children)

Journalistic standards are remarkably low on TikTok. One might go so far as to say that they are entirely absent.

[–] [email protected] 16 points 1 year ago* (last edited 1 year ago) (3 children)

It's almost as if the platform is explicitly meant to provide the video equivalent of Xitter's 144 character meaningless messages.

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[–] [email protected] 32 points 1 year ago

Wait a minute, you mean to tell me that people on TikTok will lie to everyone for views? /s

[–] [email protected] 30 points 1 year ago

You're telling me all those self diagnosed individuals are spreading misinformation? How shocking...

[–] [email protected] 27 points 1 year ago

The mental health misinformation (or more charitably, widespread misunderstanding) on TikTok is fucking wild. Especially in regard to ADHD, autism, and couples therapy

[–] [email protected] 26 points 1 year ago

This is probably what you can expect when the subject matter is as fraught as anything-mental-health can be, and when what passes for clinical experts willing and able to share information on it are so rare as to be unicorns, plus many of them are working from outdated DSM criteria anyhow.

I was clinically diagnosed during the pandemic, then turned unpacking my own experience of autism into a new special interest (lol of course I would do that). I specifically follow quite a few accounts on tiktok belonging to health care practitioners and researchers, and I regard what they have to say in that light, while I also follow lots of 'hey-I-self-diagnosed-now-let's-talk-about-it' accounts and consider what they have to say in that light.

I'm left with the impression that the researchers and practitioners are in an exciting, evolving field in which the subject matter is less-well-known than we might all like, and that the lay autistic folk sharing their experiences are doing it because frankly, the experts weren't filling that need and what do high-masking/hyperverbal autistic folk do when we know a thing or two? We infodump, that's what we do. (like this. you're reading it now. sorry, not-sorry)

Are we always right? Heavens, no.

But, is the bar low to begin with? Oh, yes. Yes, it is. For example, while these tiktokers are sharing what they think (maybe it's wrong, or DSM-inaccurate, etc.) there are also charlatans out there waving autism around like it's a boogeyman your children get if they receive vaccinations, when there's no evidence to support claims like that.

[–] [email protected] 20 points 1 year ago

"In a surprise finding, experts conclude TikTok is not a reliable source for factual information."

[–] [email protected] 20 points 1 year ago

Wait so all of my favorite self diagnosed autism spectrum content creators might not know what they're talking about 🫨🫨🫨

[–] [email protected] 18 points 1 year ago (1 children)

What are you gonna tell me next, that 4chan isn't the best place to go for relationship advice?

[–] [email protected] 13 points 1 year ago

Still better relationship advice than Tiktok

[–] [email protected] 13 points 1 year ago (8 children)

Inaccuracy was measured against the Autism diagnosis in the DSM and standard approved treatments. These are always going to be out of date because you're not allowed to run tests on humans. Something about ethics. So the DSM and psych industry are always playing catch-up. Meanwhile, you have a large group of people with lived experience sharing that experience. Surely that counts for something?

"Videos produced by health care practitioners were more likely to be *accurate * [emphasis mine] compared to those by autistic creators and ‘other’ creators"

Yes, of course the actual autistic people would know less about how to address their daily issues than doctors /s

Still, anyone who created a tiktok on how to 'cure' autism can get fucked. That part I can agree with.

[–] [email protected] 18 points 1 year ago* (last edited 1 year ago) (5 children)

Yes, of course the actual autistic people would know less about how to address their daily issues than doctors /s

They would be familiar with their own personal experience, yes. But things like autism vary greatly. Doctors will understand the condition more generally.

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[–] [email protected] 11 points 1 year ago

Meanwhile, you have a large group of people with lived experience sharing that experience. Surely that counts for something?

Not necessarily.

My kid has been diagnosed with autism and ADHD, and going through the diagnosis process, we realised that I fit a lot of the symptoms. Speaking to friends with various disorders and mental health issues, as well as reading up on them online, we found out that autism and ADHD have overlaps in behaviour. They also overlap with anxiety, OCD, bipolar disorder, and a few others.

The bouncing knee seems to be recognised as a stim for autism, hyperactivity for ADHD, and a nervous behaviour for anxiety. A group of people could convince someone that it's a sign of whichever diagnosis they personally have, while not knowing about the others, all while not realising that the person asking is just suffering from caffeine withdrawal.

Obviously this is an oversimplification, but hopefully it helps to point out that all groups have their own blind spots, and we all tend to colour things with our own perspective.

[–] [email protected] 9 points 1 year ago

Yes, of course the actual autistic people would know less about how to address their daily issues than doctors /s

Its been shown time and time again though that the people who are gaining attention/views/money on tiktok and whatnot... are not exactly likely to be telling the truth.

People figure out very fast whatever magic flavorful words they need to say every month to farm the clicks and get those likes and shares.

I'd expect the majority of people you see claiming they are autistic on tiktok and proceeding to start giving medical advice about it, are likely just lying for money.

It becomes even more obvious when you look at their history and see that what they focus on shifts every few months in terms of content they push.

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[–] [email protected] 9 points 1 year ago* (last edited 1 year ago)

BREAKING NEWS: PEOPLE SAY WRONG THINGS ON THE INTERNET!

[–] [email protected] 8 points 1 year ago

TikTok has some nice stuff but also people making stuff up for attention and clout.

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