Drusas

joined 8 months ago
[–] [email protected] 3 points 6 months ago (1 children)

I'll bet powdered mustard would work well.

[–] [email protected] 2 points 6 months ago

I thought it was about the school year starting.

[–] [email protected] 1 points 6 months ago

That was my 8th grade graduation song.

[–] [email protected] 7 points 6 months ago (2 children)

I'm sorry you're dealing with a mystery health condition, and especially so young. I've been through much the same. Eventually, gradually, you come to get used to how your body works now and health(/death) isn't always at the forefront of your mind. Hobbies and distractions do help, even something as simple a reading, watching movies, listening to audiobooks, bird-watching, whatever works best for you.

I would also recommend that you measure your heart rate and blood pressure while lying down versus while standing up. This is how I found out that I have postural orthostatic tachycardia syndrome (POTS) -- which is a long name that means, essentially, my body cannot properly regulate my heart rate, causing it to skyrocket when I'm not laying down. It's not an uncommon condition, but it is one that most medical professionals will not think of to test for.

[–] [email protected] 2 points 6 months ago (1 children)

That must suck for disabled people.

[–] [email protected] 1 points 6 months ago

Unfortunately, the bar really is pretty low. Even most modern men who would consider themselves to be feminists(/consider woman to be equals) don't do their fair share of household work, let alone parenting. It's really ingrained in the culture.

[–] [email protected] 4 points 6 months ago (1 children)

"Broken but fine" is not fine.

[–] [email protected] 10 points 6 months ago* (last edited 6 months ago)

Sounds like men don't want to write books about it (or otherwise feel disincentivized for doing so), so all you're seeing are female perspectives.

[–] [email protected] 25 points 7 months ago (1 children)

Well, it's clearly not working.

[–] [email protected] 27 points 7 months ago (1 children)

So many of us agree with you.

[–] [email protected] 56 points 7 months ago

When I initially became disabled, I tried to keep working desperately. I spent a couple of months working from bed before I had to give up.

Just an anecdote. Most people don't actually work from bed.

[–] [email protected] 6 points 7 months ago

Beautiful Life by Ace of Base

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