I thought it was about the school year starting.
Drusas
That was my 8th grade graduation song.
I'm sorry you're dealing with a mystery health condition, and especially so young. I've been through much the same. Eventually, gradually, you come to get used to how your body works now and health(/death) isn't always at the forefront of your mind. Hobbies and distractions do help, even something as simple a reading, watching movies, listening to audiobooks, bird-watching, whatever works best for you.
I would also recommend that you measure your heart rate and blood pressure while lying down versus while standing up. This is how I found out that I have postural orthostatic tachycardia syndrome (POTS) -- which is a long name that means, essentially, my body cannot properly regulate my heart rate, causing it to skyrocket when I'm not laying down. It's not an uncommon condition, but it is one that most medical professionals will not think of to test for.
That must suck for disabled people.
Unfortunately, the bar really is pretty low. Even most modern men who would consider themselves to be feminists(/consider woman to be equals) don't do their fair share of household work, let alone parenting. It's really ingrained in the culture.
"Broken but fine" is not fine.
Sounds like men don't want to write books about it (or otherwise feel disincentivized for doing so), so all you're seeing are female perspectives.
Well, it's clearly not working.
So many of us agree with you.
When I initially became disabled, I tried to keep working desperately. I spent a couple of months working from bed before I had to give up.
Just an anecdote. Most people don't actually work from bed.
Beautiful Life by Ace of Base
I'll bet powdered mustard would work well.